Help! We suspect or have an Alzheimer’s or other dementia diagnosis.

Three suggested steps:

1. Educate yourselves.  Here are two excellent resources:

2.  Obtain a diagnosis. This is critical to find treatment options and to establish a professional caregiving team.

3.  Have current legal documents: Durable Power of Attorney, Healthcare Directive, Healthcare Power of Attorney, and Will.

Do your loved ones know where to find your important information?

Caregiver Resources

The following resources are informational only; we do not endorse any particular organization or service.  If you’d like your resource mentioned here contact me on the form below.

Click on on the + sign to find the list of resources.

General Resources

Dementia Resources

The Alzheimer’s Association is rich with resources for people dealing with all forms of dementia:  Alzheimer’s Association

So Many Goodbyes: Alzheimer’s Support; Karla Hult Founder; Mentorships, Workshops and Events

Lewy Body Dementia Association (U.S.)

The Lewy Body Society (U.K.)

Lewy Body Dementia (Canada)

Legal and Financial:

AARP Financial and Legal Checklist

AARP Money Resources

American Bar Toolkit for Advance Planning

Senior Planning Services – Applying for Medicaid

Irrevocable Trusts and Medicaid

Dementia and Driving

Other Caregiver Resources

AARP Resources for Caregivers

Testing.com – tips for seniors offers tips to help the elderly through medical tests. Testing.com also takes orders for a large variety of tests which can be done at home, or taken to a local laboratory.

Medical Alert System – Advice from Caring.com on the most dependable medical alert systems.

Sr. Housing for Low-Income Residents – A thorough coverage of housing options and methods for low-income seniors.

National Marrow Donor Program/Be the Match®:  Caregiver Resources – Cancer, Transplant and General

Daily Caregiving – Subscribe to tips for daily caregiving

Take Them a Meal – Easy on-line meal scheduling.

Lotsa Helping Hands – Meals or Transportation Scheduiling: Lotsa Helping Hands

Sensory Resources for People With Dementia – buy puzzles, sensory packs, games and more from

App:

CareTrainr –  The CareTrainr app records information for paid caregivers, or others coming in to care for a loved one. Note, there is a monthly charge to utilize the app.

Articles on Brain Health from the American Academy of Neurology: 

Healthy Living

Nursing Home Evaluation:

Medicare – Nursing Homes

Minnesota – Nursing Home Report Card

Nursing Home Neglect Legal Help (informational only, not an endorsement of private businesses):

Nursing Home Neglect

Report Nursing Home Abuse

Inpatient Drug Rehab Centers:

Inpatient Rehab Centers

Seniors suffering from mesothelioma can find free care and support: 

Asbestos Help

Books for Caregivers

Being Mortal: Medicine and What Matters in the End by Atul Gawande

The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Other Dementias, and Memory Loss by Nancy L Mace, MA and Peter V. Rabins, MD, Ph.D.

Dementia With Dignity: Living Well with Alzheimer’s or Dementia Using the DAWN Method®  by Judy Cornish

When Caregiving Calls: Guidance as Your Care for a Parent, Spouse or Aging Relative by Aaron Blight, Ed.D.

No Regrets: Hope for your Caregiving Season by Rayna Neises

My Two Elaines by Martin J. Schreiber

H.O.P.E. for the Alzheimer’s Journey by Carol B. Amos

The Nourished Brain by Cheryl Mussatto

 

Selfcare for Caregivers

Juniper – Classes for caregivers to take charge of their health

CDC – Healthcare Workers Handbook (also good tips for non-professionals doing homecare)

MORE FREE RESOURCES

“One person caring about another represents life’s greatest value.”

-John Rohn

 

“Caregiving often calls us to lean into love we didn’t know possible.”

-Tia Walker